How can we help you?

Such a simple question. But if your child has a brain tumor, even a simple question can sometimes add to your angst. You may not be able to recognize what it is you need, you may not be able to frame the question…but you know you need help.

The Program

The Brain Tumor Foundation hosts a series of discussions for parents and caregivers of children up to 20 years of age, with brain tumors. Discussions will be devoted to different topics based on your experiences and your input. Family to Family, Parent to Parent. Pediatric health professionals will join the conversation.

We know that each family’s experience is very, very different and each child’s situation is unique. And yet over and over families face similar questions as they struggle to deal with the illness.

Sessions will be held via Zoom.
Times and dates will be announced.

Decision-making and Coordination of My Child’s Care

My child was diagnosed with a brain tumor. How do I find the most appropriate doctor?

I am happy with my child’s doctor, but I often hear it’s best to get a second opinion. Will I be insulting the doctor if I consult with someone else?

Given the current Covid-19 health concern that we are all facing, how will my child’s treatment be handled? How safe is it for him/her to be in a hospital?

Overcoming Financial and Logistical Challenges in the Family

We feel very isolated; like no one can possibly understand what we are going through. Is there a way I can reach out to other families who are in a similar situation?

There are so many financial issues that seem to keep coming up, it’s becoming overwhelming. How can I find help to alleviate some of the financial burdens we’re facing?

Can someone help us find lodging should my child’s treatment take us away from our home base?

Addressing My Child’s Academic and Emotional Needs

I feel like my child is starting to get very withdrawn. How can I keep him socially engaged so he/she continues participating in life’s activities?